So...yesterday my Dr. came into my hospital room and pulled up a chair, at which point he mentioned the word no one with Cystic Fibrosis wants to hear, transplant. I have some harsh things growing in my lungs that we are having a hard time getting rid of with all available antibiotics. This was not something I was ready for or expecting to hear for at least another 10+ years, so I am still dealing with the shock of it all.
Not sure how fast or slow this process will be as my main focus right now is to get well enough to get out of the hospital and home to my family. Working on my 3rd week here, which is just too long. Some lifestyle changes are going to be made immediately in hopes of getting in peak physical condition and hopefully stave off transplant for as long as possible. I think our first step will be meeting with my medical team and a consult with the transplant team at USC to see what they say and if I would even qualify. Until then I am going to try not to worry about this too much (yeah right, haha) and if I do at least there are good drugs available
I can try and say I am staying strong, but I would be lying...I am a wreck and I don't think it has really hit me yet. When it does I take comfort in knowing that I have the greatest family and friends as a support system available and I thank you all for the support in the past and that which I will need in the future.
For now I am going to take a break from the board so I can focus more fully on the issues at hand and although this place has always provided a nice respite from reality, I need to spend more time focusing on what is most important to me, my kids and family.
Thanks for all the good times and I will definitely check in from time to time to keep up with my 2nd reality here in message board land
See you at the show...
P.S. - Kinda wish Randy was here to ask me if I wonder why God has done this to me